Our annual fund raiser (the ALGSA Virtual Walk) started September 1st. Check out our dedicated Virtual Walk site here: https://algsavirtualwalk.org to learn more about the walk and setup your team or just donate. Watch the video below to see what ALGSA Virtual Walk 2016 is all about. Thank you for your support!
The latest Links4Life is ready for you. Download it now Latest Links4Life Download Link. Highlights of this issue include highlights from this year's Symposium and information on the upcoming Virtual Walk. Get yours today! If you want to receive a paper copy, please use the contact form on this website to send us a note. Make sure you include your mailing address. Thank you!
To celebrate we designed an ALGS Warrior t-shirt. The shirt helps raise awareness for our favorite rare disease (ALGS), and it supports the overall Rare Disease Day event. You can purchase your ALGS Warrior t-shirt from our ALGS Gear page. We are encouraging everyone to take a selfie wearing the ALGS Warrior t-shirt and post it to their favorite social media site. Don't forget to use the hashtags #rarediseaseday and #algswarrior. Have fun!