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Report about Brendon Ednie, a child with AGS, who received a triple organtransplant (heart, liver, lungs) at Children's Hospital in Pittsburgh.(Pittsburgh Post-Gazette December 12, 1998)
A website for kids with debilitating illness.
The Alagille Syndrome clinicalcare program website.
The Cholestatic Liver Disease Consortium (CLiC) is a collaborative team of doctors, nurses, research coordinators, and patient support organizationsthroughout the US and London, UK working together to improve the lives of children and families dealing with rare Cholestatic Liver Diseases. The goal ofthe CLiC team is to investigate five genetic causes of intrahepatic cholestasisand to train the next generation of clinical researchers.
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Page dedicated to Alagille Syndrome.
Link to a website with a comprehensive listing of health organizations.
American Liver Foundation
A wealth of information about diagnosis and treatment of AGS.
agswebmaster(at)alagille.net
The information presented on this web site is provided for information purposes only. This information does not constitute medical advice and it should not be relied upon as such. The Alagille Syndrome Alliance does not engage in the practice of medicine. Under no circumstances, does the Alagille SyndromeAlliance recommend particular treatments for specific individuals, and in all cases recommends that you consult your physician before pursuingany course of treatment.
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