NOTE: The web links are listed in alphabetical order.
American Liver Foundation Homepage
Post-Gazette article entitled "Children's Has Triple Transplant Into 3-Year-Old"
Report about Brendon Ednie, a child with AGS, who received a triple organ
transplant (heart, liver, lungs) at Children's Hospital in Pittsburgh.
(Pittsburgh Post-Gazette December 12, 1998)
Bandaids and Blackboards
A website for kids with debilitating illness.
The Children's Hospital of Philadelphia
The Alagille Syndrome clinical
care program website.
The Children's Liver Alliance (Australia)
A support group for families of children with all forms of liver disease and
disorders. Includes a weekly chat room.
CLiC
The Cholestatic Liver Disease Consortium (CLiC) is a collaborative team of
doctors, nurses, research coordinators, and patient support organizations
throughout the US and London, UK working together to improve the lives of
children and families dealing with rare Cholestatic Liver Diseases. The goal of
the CLiC team is to investigate five genetic causes of intrahepatic cholestasis
and to train the next generation of clinical researchers.
Cincinnati Children's Medical Center
Page dedicated to Alagille Syndrome.
Digestive Health Website
Informative site with many articles and the latest information about
digestive health.
Health Links Website
Link to a website with a comprehensive listing of health organizations.
Japanese Alagille Syndrome Information site
Page for the Online Mendelian Inheritance in Man
A wealth of information about diagnosis and treatment of AGS.