Symposium 2014 Surveys Available
If you attended the 2014 Symposium but forgot to fill out a survey, please download a survey now, fill it out and email it back to alagille(at)alagille.org. We want to know what you thought about the speakers, location, childcare, food and anything else that is on your mind. Thank you!
Symposium 2014 Video Available to View
In case you missed it, we have all the Symposium videos available to view on our YouTube channel. You can catch sessions you missed or watch the whole thing if you want to. Check them out here: ALGSA YouTube Channel
ALGS'er in Ireland Shares Her Story
Katie, an ALGS'er in Northern Ireland, shares her heartwarming story with the world. Watch it now on YouTube.
There’s power in numbers. Help us build our patient registry!
The ALGSA announces our own disease registry! We invite all ALGSers to join, to provide de-identified medical information to the registry to help everyone in the global ALGS community – patients, families, researchers, clinicians, and pharmaceutical companies – learn more about ALGS. The goal is improved diagnosis and medical care, as well as empowerment of patients and families through knowledge, connections, and support. If you have any questions about the ALGSA CONNECT registry, or to opt in, please contact us at alagille(at)alagille.org.
Join the ALGSA CONNECT registry