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Participate in the 2015 Virtual Walk for a Better Life
September 1-October 15, 2015


 

 

Raising Awareness and Generating Support for a Better Life

Click here to sign up or visit www.ALGSAVirtualWalk.org.

The Alagille Syndrome Alliance (ALGSA) is mobilizing Alagille (ALGS) families and supporters to generate awareness of ALGS and support for programs that benefit the ALGS community. Virtual Walk activities are developed by local teams and can include activities such as an in-person walk or event on a specific day, asking friends and family to make a pledge, or even a car wash or bake sale. A Virtual Walk can be anything you want it to be!

Each year, Virtual Walk participants raise thousands of dollars to support programs that benefit our ALGS community. This includes a bi-annual symposium, regional events, ALGS research, development of tools that support ALGS families, advocacy activities, and newsletters and other communications that bring our community and families together. We are here to support, inform, and benefit our ALGS community.

How do I participate?

  • Form a Team: Gather friends and family and form a Virtual Walk team! Click here to get started. From your Virtual Walk Team Page, you can tell your story, collect pledges, and share information about your Virtual Walk activity.
  • Join a Team: Click here to join a team. Through your team, you can spread the word and accept pledges.
  • Make a Pledge: It’s easy to make a donation to a Team or Walk Participant. Click here to donate.

 

 


Latest Links4Life Available for Download


The latest issue of Links4Life is now available for download in PDF format.  The issue is highlighted by a report for the ALGSA board of directors and information about the Alaina Kaitlyn Hahn Celebratory Scholarship along with lots of other cool items.  Check it out now!


 

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The information presented on this web site is provided for information purposes only. This information does not constitute medical advice and it should not be relied upon as such. The Alagille Syndrome Alliance does not engage in the practice of medicine. Under no circumstances, does the Alagille SyndromeAlliance recommend particular treatments for specific individuals, and in all cases recommends that you consult your physician before pursuingany course of treatment. 

The information presented on this website is provided for information purposes only.  This information does not constitute medical advice and it should not be relied upon as such.  The Alagille Syndrome Alliance does not engage in the practice of medicine.  Under no circumstances does the Alagille Syndrome Alliance recommend particular treatments for specific individuals, and in all cases recommends that you consult your physician before pursuing any course of treatment.

 

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